Sara Riggare
Researcher at Institutionen för kvinnors och barns hälsa; E-hälsa och hälsodata
- E-mail:
- sara.riggare@uu.se
- Visiting address:
- MTC-huset, Dag Hammarskjölds väg 14B, 1 tr
752 37 Uppsala - Postal address:
- Akademiska sjukhuset
751 85 UPPSALA
Researcher at Centrum för forskning om funktionshinder
- E-mail:
- sara.riggare@cff.uu.se
- Visiting address:
- BMC, Husargatan 3
- Postal address:
- Box 564
751 22 UPPSALA
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Research
Sara Riggare, (MSc, PhD), is a patient researcher at the department of Women's and Children's health. Her dissertation was defended at Radboud University, the Netherlands, and titled: “Personal science in Parkinson’s disease: a patient-led research study” (download link here). Personal science is a framework of study for single subject research that provides a structure for using your own observations and data to find answers for your own questions.
Sara has used personal science to improve her own selfcare for Parkinson’s disease, and also investigated how other persons with Parkinson’s disease use personal science. Her research is focused on personal science, self-tracking, Quantified Self, and patient-led research.
Publications
Recent publications
- Balancing feeling 'prepared' without feeling 'devoured' (2024)
- Objectives and outcomes of patient-driven innovations published in peer-reviewed journals (2023)
- Patients' and clinicians' views on the appropriate use of safety-netting advice in consultations (2023)
- The NORDeHEALTH 2022 Patient Survey (2023)
- Empowered patients and informal care-givers as partners? (2023)
All publications
Articles
- Balancing feeling 'prepared' without feeling 'devoured' (2024)
- Objectives and outcomes of patient-driven innovations published in peer-reviewed journals (2023)
- Patients' and clinicians' views on the appropriate use of safety-netting advice in consultations (2023)
- The NORDeHEALTH 2022 Patient Survey (2023)
- Empowered patients and informal care-givers as partners? (2023)
- A rocky road but worth the drive (2023)
- Patient lead users experience of the COVID-19 pandemic (2022)
- Patient-driven innovations reported in peer-reviewed journals (2022)
- Meeting the Burden of Self-management (2022)
- Ethical Aspects of Personal Science for Persons with Parkinson’s Disease (2021)
- A Long Way to Go (2021)
- Deep Phenotyping of Parkinson's Disease (2020)
- Individually Tailored Internet-Based Cognitive-Behavioral Therapy for Daily Functioning in Patients with Parkinson's Disease (2020)
- Patient researchers - the missing link? (2020)
- Patient advocates respond to 'Utilizing Patient Advocates…' by Feeney et al (2020)
- “You have to know why you're doing this” (2019)
- From Information Seekers to Innovators (2019)
- Precision Medicine in Parkinson's Disease - (2018)
- Patients are doing it for themselves (2017)
- Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia (2017)
