Lisa Andersson
Researcher at Department of ALM
- Email:
- lisa.andersson[AT-sign]abm.uu.se
- Visiting address:
- Engelska parken
Thunbergsvägen 3H
752 38 Uppsala - Postal address:
- Box 625
751 26 UPPSALA
Short presentation
I'm a researcher at the Department of ALM. I received a MA degree in library and information studies 2011 and a PhD degree in information studies at Uppsala University in 2017.
I conduct research on information management and information systems in the projects CApturing Paradata for documenTing data creation and Use for the REsearch of the future (CAPTURE) and Parental information management and mental health in families with children with neurodevelopmental disabilities (PIMM).
Keywords: information studies science studies sociology of knowledge archaeological documentation documentation studies studies of archaeological documentation information systems research information information practices archaeological information information management parent support personal information management
Parental information work and wage work capacity in families with children with neurodevelopmental disabilities (PIW) (together with Emma Laurin, Department of Education, UU)
Summary
Previous research establishes that parents, and primarily mothers, of children with neurodevelopmental disabilities like autism and ADHD suffer from reduced work capacity and need extended periods of sick leave. The cause of the reduced work capacity remains unclear. This study examines how parents’ daily information work affects their wage work capacity. Information work includes searching, managing, and sharing information related to the care of the child with societal actors such the school, the child- and youth psychiatry, and the
Social Insurance Agency.
Research problem and specific questions
The overarching research question is: how do parental information work related to the care of children with neurodevelopmental disabilities affect parents’ wage work capacity? Sub-questions clarify what types of information work parents carry out, how they experience the information work and its effect on wage work, as well as how social and economic premises affect experiences of the relation between information work and wage work.
Data and method
Two sub-studies inspired by co-operative inquiry combine a quantitative tracking of parental information work activities through a digital time-diary with a qualitative interview- and observation study of parents’ experiences of information work.
Societal relevance and utilization
The project generates new knowledge about why parents, especially mothers, of children with
neurodevelopmental disabilities work part time and have longer periods of sick leave than parents in general. The project also produces recommendations for how societal actors' information systems and routines can be adapted to support a healthy and long-term sustainable work life for parents of children with neurodevelopmental disabilities. The project also addresses the question of how society can support all parents’ – regardless of gender and social conditions – equal opportunities to combine care and wage work.
Plan for project realization
The project is carried out over three years, in close collaboration with the NGO Attention working to support people with neurodevelopmental disabilities. A reference group consisting of experts from research, government agencies and NGOs will give continuous feedback on the study design and results. The findings are reported in scholarly journals, a conference for schools, health care, and government agencies, as well as in a report for parents, government agencies and employers.
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