I'm a researcher at the Department of ALM. I received a MA degree in library and information studies 2011 and a PhD degree in information studies at Uppsala University in 2017.
I conduct research on information management and information systems in the projects CApturing Paradata for documenTing data creation and Use for the REsearch of the future (CAPTURE) and Parental information management and mental health in families with children with neurodevelopmental disabilities (PIMM).
Keywords: information studies science studies sociology of knowledge archaeological documentation documentation studies studies of archaeological documentation information systems research information information practices archaeological information
Parental information management and mental health in families with children with neurodevelopmental disabilities (PIMM)
Parents of children with neurodevelopmental disabilities suffer from stress and distress. The causes of stress are manifold and interwoven including the burden of care, worry for the future, and lack of social support. Parents and parent organizations also report the burden of managing information and coordinating information sharing with the many parties involved in the care of the child as being particularly taxing. Many parents work only reduced hours and take extended periods of sick leave due to burnout. Parental stress and distress is known to affect children’s well-being, treatment outcomes, and behavioral problems. Interventions directed towards parents focus on parental education and Acceptance and Commitment Therapy (ACT), both targeting parent’s behavioral capacities and supporting parent’s development of adaptive and effective parenting practices. Less attention has been paid to parents’ information work environment and the information activities taxing parents’ cognitive capacities. The Parental information management and mental health in families with children with neurodevelopmental disabilities (PIMM) project develops knowledge about the parents’ information sharing activities and how the parents’ information work environment can be developed to reduce the cognitive burden and help prevent parental stress.
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