Santa Slokenberga
Senior Lecturer/Associate Professor at Juridiska institutionen; Professorer, lärare, forskare
- Telephone:
- +46 18 471 74 20
- E-mail:
- santa.slokenberga@jur.uu.se
- Visiting address:
- Trädgårdsgatan 1 och 20, Västra Ågatan 26
- Postal address:
- Box 512
751 20 UPPSALA
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Short presentation
Santa is a senior lecturer in administrative law at Uppsala University since 2020. Santa’s research focuses on the regulation of new and emerging technologies in health care, such as gene editing and AI, and the protection of personal data. Her other research interests include regulating the standards of medical care and scientific uncertainty, and the protection of paediatric patients.
Publications
Selection of publications
- The standard of care and implications for paediatric decision-making (2021)
- Latvia (2020)
- Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia (2020)
- Medicinsk rätt (2020)
- Protecting the Rights of Children with Intersex Conditions from Nonconsensual Gender-Conforming Medical Interventions (2019)
- THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act (2019)
- The Regulation of Human Germline Genome Modification in Sweden (2019)
- EU data transfer rules and African legal realities (2019)
- The GDPR and the research exemption (2019)
- Data Portability in Health Research and Biobanking (2018)
- Legislation of direct-to-consumer genetic testing in Europe: (2018)
- Final Ethics and Legal Framework (2018)
- Book review - T.K. Hervey, C.A. Young and L.E. Bishop (eds.) Research Handbook on EU Health Law and Policy (Cheltenham: Edward Elgar Publishing, 2017), ISBN 978-1785364716, 592 pp. (2018)
- Biobanking between the EU and Third Countries - Can Data Sharing Be Facilitated via Soft Regulatory Tools? (2018)
- Legal and ethical governance of intercontinental biobanking (2017)
- The Rights of Children in Biomedicine (2017)
- European Legal Perspectives on Health-Related Direct-to-Consumer Genetic Testing (2016)
- Direct-to-consumer Genetic Testing (2015)
Recent publications
- The European Health Data Space (2024)
- Festskrift till Elisabeth Rynning (2023)
- EVDT regulas priekšlikumsun Datu otrreizējās izmantošanaslikumprojekts (2023)
- What Would It Take to Enable Germline Editing in Europe for Medical Purposes? (2023)
- Veselības datu tiesiskā regulējuma transformācija (2023)
All publications
Articles
- EVDT regulas priekšlikumsun Datu otrreizējās izmantošanaslikumprojekts (2023)
- Veselības datu tiesiskā regulējuma transformācija (2023)
- Harmonization after the GDPR? Divergences in the rules for genetic and health data sharing in four member states and ways to overcome them by EU measures: insights from Germany, Greece, Latvia and Sweden (2022)
- Scientific research regime 2.0? (2022)
- What Would It Take to Enable Germline Editing in Europe for Medical Purposes? (2022)
- Governing, Protecting, and Regulating the Future of Genome Editing (2022)
- Appropriate Safeguards and Article 89 of the GDPR (2022)
- Case C-243/19, A v Veselibas ministrija, Judgement of the Court (Second Chamber) of 29 October 2020, EU:C:2020:872 (2021)
- You can't put the genie back in the bottle (2021)
- Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia (2020)
- Protecting the Rights of Children with Intersex Conditions from Nonconsensual Gender-Conforming Medical Interventions (2019)
- THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act (2019)
- EU data transfer rules and African legal realities (2019)
- The GDPR and the research exemption (2019)
- Data Portability in Health Research and Biobanking (2018)
- Legislation of direct-to-consumer genetic testing in Europe: (2018)
- Book review - T.K. Hervey, C.A. Young and L.E. Bishop (eds.) Research Handbook on EU Health Law and Policy (Cheltenham: Edward Elgar Publishing, 2017), ISBN 978-1785364716, 592 pp. (2018)
- Biobanking between the EU and Third Countries - Can Data Sharing Be Facilitated via Soft Regulatory Tools? (2018)
- Legal and ethical governance of intercontinental biobanking (2017)
- Valsts prezidenta veselība: divas slimnīcas un divas atšķirīgas reakcijas [President’s health: two hospitals and two differnt approaches (concerning health data sharing with media)] (2016)
- Problemātika ar ES pievienošanos Eiropas Cilvēktiesību konvencijai [The EU accession to the ECHR: Opinion 2/2013 and related issues] (2015)
- Direct-to-consumer Genetic Testing (2015)
- Medical Aid in dying in Quebec - legal considerations (2014)
- Ārstniecības personu administratīvā atbildība: slazds, kas ietverts LAPK [Healthcare professionals’ administrative liability: trap in the law’] (2013)
Books
- Festskrift till Elisabeth Rynning (2023)
- Governing, Protecting, and Regulating the Future of Genome Editing (2022)
- Medicīnas tiesības (2022)
- Medicinsk rätt (2022)
- GDPR and Biobanking (2021)
- Medicinsk rätt (2020)
- European Legal Perspectives on Health-Related Direct-to-Consumer Genetic Testing (2016)
Chapters
- What Would It Take to Enable Germline Editing in Europe for Medical Purposes? (2023)
- Introduction (2023)
- Ārstniecības iestāžu darbības tiesiskie aspekti (2022)
- EU regulatory responses to medical machine learning in paediatric care: A missed opportunity to overcome a therapeutic gap? (2022)
- Genetik (2022)
- Pacienta datu aizsardzība (2022)
- Eiropas Savienība un veselība (2022)
- Genetik (2022)
- Nobeigums (2022)
- Pacientu tiesības (2022)
- Ievads (2022)
- Ārstniecība cilvēka dzīves nogalē (2022)
- Vid vägs ände (2022)
- Inledning (2022)
- The standard of care and implications for paediatric decision-making (2021)
- Setting the Foundations (2021)
- Latvia (2020)
- Genetiska interventioner inom och utanför hälso- och sjukvården (2020)
- Vid vägs ände (2020)
- Inledning (2020)
- The Regulation of Human Germline Genome Modification in Sweden (2019)
- Country report: an overview of animal protection in Latvia (2017)
- Pārskats par seksuālajām un reproduktīvajām tiesībām (2015)
- Veselības aprūpe un Eiropas Savienība (EU law and health care) (2015)
- Ārstniecība cilvēka dzīves nogalē un nāves tiesiskie aspekti (2015)
Conferences
Reports
- The European Health Data Space (2024)
- D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics (2020)
- Analysis of the legal and human rights requirements for genomics in and outside the EU (2019)
- Final Ethics and Legal Framework (2018)
- The Rights of Children in Biomedicine (2017)
